WE WANT Neurofibromatosis TO BE RECOGNIZED AS A CONDITION
Contact the author of the petition
This discussion topic has been automatically created of petition WE WANT Neurofibromatosis TO BE RECOGNIZED AS A CONDITION.
Anonymous |
#1 my daughter2013-09-14 16:04my daughter almost died after a fair ride due to a tumour in her neck .. was never told it could happen |
Guest |
#22013-09-14 16:05we need more support for all of us we all get scared and very low talking helps not to give medical advice but to share our experience's with each other |
Guest |
#52013-09-14 17:41More information needs to be put out there about NF! Too many do not know what it is! |
Guest |
#72013-09-16 12:41a progressive condition which can lead to many other health problems |
Redditch United FC |
#9 Please sign2013-11-01 14:20Please sign our petition, it would be greatly appreciated - cheers http://www.petitions24.com/redditch_united_refused_relocation |
Guest |
#102013-11-01 15:18I have NF(1) I really getting tired of the suffering of my condition of NF(1) I hope they a Cure.. |
Guest |
#112013-11-01 15:22Please recognize this genetic disorder. people are suffering and we need to find a cure with research. |
Guest |
#122013-11-03 15:49My daughter has the spots, and my fiancee has it so does his family. |
Guest |
#132013-11-08 10:15o all my NF ladies in uk .... who up for doing a Calendar Girls type thing next year to raise awareness need 12 at least lol i dont mean naked but doing things for each month with facts about nf on each month need help tho as cant do it alone even get kids in it |
This post has been removed by the site administrator (Show details)
2014-06-14 21:48- Date of removal: 2014-12-19
- Reason for removal:
Guest |
#162015-06-06 18:17I HAVE NEUROFIBROMATOSIS HAD A TUMOUR ON THE OPTIC NERVE AND HAD IT REMOVED BUT FEFT ME BLIND IN ONE EYE AND WITH EPLESEPY HAVE TWIN GIRLS IN 1972 ONE IS FREE FROM IT BUT THE 0THER HAS THE MARKS AND TUM0URS HOPE THIS HELPS THE PETITION |
SANDY |
#17 NEUROFIBROMASTSIS2015-06-06 18:26MORE SHOULD BE DONE TO RECONIZE THE COMPLAINT HAVE TWINS GIRLS IN 1969 ONE IS FREE AND THE OTHER HAS IT AND WAS A SLOW LEARNER I HAVE AS WELL MY FATHER HAD THE BIRTHMARKS HOPE THIS HELPS |
Pretty |
#182015-12-11 16:24Yes please I wish that thise conditions go recognised.I am an NF1individual, and currently living in Germany, I was surprised to meet people who don't understand what I have on me and what I go through. ...but anyway i still have to move on strengthening myself through Faith in God..no matter what..He is still my God and He loves mi while no one else in the world understands me fully |
|
Investigation and Prosecution of Those Individuals Responsible for Crimes Against Humanity
Facilities Concerns at Leonard R. Flynn Elementary School
Petition to let Pop play Wemby against Portland on Friday 12/29
Including Antisemitism Awareness Training in Freshman Orientation
Cops in Utah should know what lewdness means before charging anyone with it
Is there something you want to change?
Change doesn't happen by staying silent. The author of this petition stood up and took action. Will you do the same? Start a social movement by creating a petition.
Start a petition of your ownOther petitions you might be interested in
Stop child predator from teaching children
968 Created: 2024-04-19
Time period | All countries | United States |
---|---|---|
All time | 968 | 965 |
30 days | 968 | 965 |
SDSCPA Bus Campaign
126 Created: 2024-04-15
Time period | All countries | United States |
---|---|---|
All time | 126 | 125 |
30 days | 126 | 125 |
SAVING/PRESERVING THE 1925 LANCASTER, WI HIGH SCHOOL BUILDING
97 Created: 2024-04-02
Time period | All countries | United States |
---|---|---|
All time | 97 | 97 |
30 days | 97 | 97 |
Facilities Concerns at Leonard R. Flynn Elementary School
97 Created: 2024-04-08
Time period | All countries | United States |
---|---|---|
All time | 97 | 96 |
30 days | 97 | 96 |
Winston Churchill High School
85 Created: 2024-04-10
Time period | All countries | United States |
---|---|---|
All time | 85 | 85 |
30 days | 85 | 85 |
Petition for Vanity to have more practice time in Holloway Hall
52 Created: 2024-04-23
Time period | All countries | United States |
---|---|---|
All time | 52 | 51 |
30 days | 52 | 51 |
Utah took my kids illegally help me get them back!!!
38 Created: 2024-04-07
Time period | All countries | United States |
---|---|---|
All time | 38 | 38 |
30 days | 38 | 38 |
Save Missouri's Wild Turkeys! Reverse All Day Hunting Back to 1:00 P.M. Close!
162 Created: 2024-03-26
Time period | All countries | United States |
---|---|---|
All time | 162 | 162 |
30 days | 30 | 30 |
Demand a satisfactory response from CertiK
7556 Created: 2024-03-27
Time period | All countries | United States |
---|---|---|
All time | 7556 | 51 |
30 days | 4464 | 26 |
Mac McClung NBA Contract
43 Created: 2024-03-24
Time period | All countries | United States |
---|---|---|
All time | 43 | 41 |
30 days | 24 | 23 |
Rescue MFM church victims from Dr.DK Olukoya
69 Created: 2024-04-24
Time period | All countries | United States |
---|---|---|
All time | 69 | 21 |
30 days | 69 | 21 |
A polite request to Elon Musk - please uncensor @LucyHunterB
1011 Created: 2024-03-28
Time period | All countries | United States |
---|---|---|
All time | 1011 | 19 |
30 days | 1010 | 19 |
The Community of Mvenyane & KwaBhaca Crying out Loud for the Ineffective Upgrading of District Road DR08017 from Cedarville R56(Kaka's hill) to N2 Mount Frere- kwaBhaca
1714 Created: 2024-01-31
Time period | All countries | United States |
---|---|---|
All time | 1714 | 21 |
30 days | 1206 | 18 |
Make polygamy legal in Ireland so we can save US citizens by marrying them and getting them green cards.
20 Created: 2024-04-26
Time period | All countries | United States |
---|---|---|
All time | 20 | 14 |
30 days | 20 | 14 |
global popular petition, submit to the International Court of Justice in THE HAGE, against B.NATANYAHOU AND JOE BIDEN
38 Created: 2024-04-04
Time period | All countries | United States |
---|---|---|
All time | 38 | 11 |
30 days | 38 | 11 |
Stopp steinbruddet i Bremanger! // Stop the building of a quarry in Bremanger, Norway!
5185 Created: 2024-02-07
Time period | All countries | United States |
---|---|---|
All time | 5185 | 421 |
30 days | 159 | 11 |
Cape to Cairo on Foot: World Record Attempt in Jeopardy in Ethiopia
532 Created: 2024-04-15
Time period | All countries | United States |
---|---|---|
All time | 532 | 9 |
30 days | 532 | 9 |
Restore Pioneer Jr/Sr Sunday Graduation School year 24/25
8 Created: 2024-04-01
Time period | All countries | United States |
---|---|---|
All time | 8 | 8 |
30 days | 8 | 8 |
NoHurt4Kurt
7 Created: 2024-04-25
Time period | All countries | United States |
---|---|---|
All time | 7 | 7 |
30 days | 7 | 7 |
Get Cromwell to camp with his team!
7 Created: 2024-04-15
Time period | All countries | United States |
---|---|---|
All time | 7 | 7 |
30 days | 7 | 7 |