Product review of medical foods for PKU - Low Protein Diet
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This discussion topic has been automatically created of petition Product review of medical foods for PKU - Low Protein Diet.
Guest |
#262016-11-18 17:34Most of us take food for granted but for those with PKU it is a daily challenge. Anything that can help to reduce the monotony and increase the quality of the low protein diet will improve the life of Those with PKU and their families |
Guest |
#292016-11-18 19:10Harry is a friend of mine but I wasn't aware that his wife suffered from PKU. I hope this petition will create more awareness of the illness and will lead to more PKU foods being made available in Ireland. |
Guest |
#302016-11-18 19:15Every child needs a chance in life, it is so difficult for a small child to understand why he can't eat what his siblings and family eat. Please make life easier for all with this condition. |
Guest |
#322016-11-18 19:28My nephew was diagnosed at birth with pku. If every other country in Europe can provide pku patients with up to date foods, Ireland should be able to too |
Guest |
#382016-11-18 20:22My grandson has PKU and the diet can be challenging. New foods would be a great addition. |
Guest |
#392016-11-18 20:36Because I work in pharmacy and I see many patients with the same complaint |
Guest |
#422016-11-18 22:41I signed to try and help improve things and services for people with this condition. |
Guest |
#432016-11-18 22:54My lovely sister has PKU, she has many challenges in her life food shouldn't be one of them. To the Powers that be please sort this out. |
Guest |
#442016-11-18 22:58I have signed this petition in support of my girlfriend as she has PKU |
Guest |
#452016-11-18 23:09I have a 5 month old baby with pku and it would make life alot easier for me and him if there was more of a range of foods for him! |
Guest |
#492016-11-19 00:28I know the struggle of the price of low pro foods!! And I know the struggle of staying on diet when these foods are not avaliable!! |
Guest |
#502016-11-19 00:36I see the struggles my cousin has to endure day in and day out on her very limited PKU diet. Its unacceptable, a life long condition should be supported by the government to give suffers the best quality of life possible. Recovering heroin addicts have metadone prescribed by the state which I'm sure costs a pretty penny, but drug taking starts off by choice, PKU sufferers are born with this condition, they have had no choice ever but to live with it. It's food they can eat is all they ask for, good quality food, not the cheap muck that's forced on them. |
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